Eddie Vedder has released an animated video for a new song,“Matter Of Time”, following a live performance of the tune during the November 18 virtual fundraising event "Venture Into Cures."
The Pearl Jam singer also issued a clip of an updated version of "Say Hi" from the livestreamed show, with both available now and, soon, together on a limited-edition 7” vinyl single.
The event, organized by Eddie and his wife Jill, featured uplifting stories about individuals and families living with Epidermolysis Bullosa (EB) alongside appearances and performances from celebrity friends to educate viewers about EB and raise critical funds for research toward a cure for EB and other rare diseases.
"Ed and I are incredibly grateful to everyone joining us for Venture Into Cures," says Jill Vedder. "Every day kids with EB and their families face astonishing challenges. This event will give people a glimpse into their world. EBRP's mission is to find a cure for EB, and this event will help bring us one step closer to making that mission a reality by adding momentum to the work being done."
EB is a life-threatening genetic disorder that affects approximately 500,000 people worldwide. Called "Butterfly Children" because their skin is as fragile as the wings of a butterfly, children with EB face severe pain, open external and internal wounds, and a grueling daily bandaging process. There is currently no treatment or cure for EB, however EBRP's innovative Venture Philanthropy model is helping to fast-track not only a cure for EB, but therapies that could affect thousands of other rare diseases.
As the largest global organization supporting EB research, EBRP has funded 80 projects through their innovative model, directly impacting the clinical landscape. Through EBRP's work, clinical trials for EB have increased by 15 times, including four Phase III clinical trials, the final phase before the FDA considers approval for a new therapy.
"Venture Into Cures" featured performances and appearances by Judd Apatow, Jon Batiste, Alessia Cara, Bradley Cooper, Andra Day, Laura Dern, Billie Eilish, Glen Hansard, Chris Hemsworth, Jimmy Kimmel, David Letterman, Adam Levine, Gaten Matarazzo, Keb' Mo', Lukas Nelson & Promise of the Real with Micah, & Willie Nelson, Luis "King Kong" Ortiz, Adam Sandler and Renée Zellweger.
For more information and to donate to the EB Research Partnership, visit ebresearch.org or text HEALEB to 41411.
See also:
Pearl Jam share Ten album concert footage
Pearl Jam preview 30th anniversary broadcast event
Pearl Jam stream new single Get It Back
Pearl Jam to release 1992 MTV Unplugged performance
Search Pearl Jam at hennemusic
